Other NHS organisations
There may be circumstances where it is necessary to share information about you with other authorities, for example, when required by law, court order or where there are specific concerns about a vulnerable adult or child or to report a notifiable disease.
There are national services such as the National Cancer Screening Programme that collect and hold information from across the NHS in order to contact you about services such as cervical, breast or bowel cancer screening.
Although these services are beneficial to your health and wellbeing, often you have the right not to allow these organisations to have your information.
If you have any concerns please contact your GP Practice, or see the “Your Rights” section for further information.
You can find out more about how the NHS holds and shares your information for national programmes on the NHS Choices website.
Your GP Practice may work with researchers who work with patients to help them with their research. If your GP thinks you may be suited to a research programme, they will contact you to ask if you would like to participate. Your GP Practice will never pass on your personal details to a researcher without your knowledge and consent.
You have certain legal rights, including a right to have your information processed fairly and lawfully and a right to access any personal information we hold about you. You have the right to privacy and to expect the NHS to keep your information confidential and secure.
You also have a right to request that your confidential information is not used beyond your own care and treatment and to have your objections considered. These commitments are set out in the NHS Constitution.
If you do not want your personal information being shared and used for purposes other than your care and treatment, then you should contact the GP Practice you are registered with and ask for further information about how to register your objections. This should not affect the care and treatment you receive. See section on Patient Control of Information for further details
If you wish to know what personal information the CCG holds about you, or to request access to that information, then please contact us.
To protect your confidentiality, you will have to provide proof of who you are and a charge for the service may apply.
All information held by the CCG is governed by the CCG’s information lifecycle management policy and is held, retained and destroyed in line with the Records Management Code of Practice for Health and Social Care (see link under further information below).
Patient control of information
You may want to prevent confidential information about you from being shared or used for any purpose other than providing your care.
There are two choices available to you:
- You can object to information about you leaving a GP Practice in an identifiable form for purposes other than your direct care, which means confidential information about you will not be shared with the CCG, NHS Digital or other organisation for any non- direct care purpose. This is referred to as a 'type 1' objection; Inaddition
- You can object to information about you leaving NHS Digital in identifiable form, which means confidential information about you will not be sent to anyone outside NHS D. This is referred to as a 'type 2'objection.
Information from other places where you receive care, such as hospitals and community services is collected nationally by NHS Digital.
If you do not want information that identifies you to be shared outside your GP practice and/or NHS Digital, please speak to a member of staff at your GP practice to ask how to “opt- out”.
The Practice will add the appropriate code to your records to prevent your confidential information from being used for non-direct care purposes. Please note that these codes can be overridden in special circumstances required by law, such as a civil emergency or public health emergency.
In both cases, it is still necessary for NHS Digital to hold information about you in order to ensure data is managed in accordance with your expressed wishes. Please see “Patient Objections Management” on the NHS Digital website for further information.
If you have questions about this, please speak to staff at your GP practice or check the NHS Digital website.